Living with Dystonia

Tyler has had his struggles the last 6 months with some pain and pulling especially more so in his face. However, lately he seems to be in a good groove. We purchased a new house that has a separate “apartment” for Tyler to live in and everything is very friendly for disabilities. It gives Tyler even more independence and I see him taking more responsibilities and becoming more of an adult. Everything is on one floor and the main house has a chair lift for him to easily come see us or get a good meal. He can do his laundry and other things but of course we are not aloud in his place unless invited. He took this semester off of school and has been working with the InterMed group as well as working on his videography and photography at Tyler Staab Media. I was able to spend some good father son time with him in Charleston last week when Tyler came to the fundraiser we held there.

Samantha is in her junior year at Oak Hall high school and continues to get very good grades. She has taken advantage of the new house and had many friends over to swim, shoot pool, play bocce ball, or just hang out. She has some really good friends on the lacrosse team and supports them by going to all the games. Doesn’t talk to your dad too much about what college she’s going to attend but at least she’s planning. She is beautiful and mature and very smart. Lately she has had some issues with her memory so she is trying to get in to check for DBS settings and batteries.

Luke just finished his middle school lacrosse season and they won the bell by finishing the season undefeated. He takes no break from lacrosse is he has to travel teams he now is playing for.