Our Mission
About Tyler’s Hope for a Dystonia Cure
Founded in 2006, Tyler’s Hope for a Dystonia Cure is dedicated to raising awareness, advancing research, and accelerating the discovery of effective treatments for dystonia.
Dystonia is a neurological movement disorder that causes involuntary muscle contractions, forcing parts of the body into abnormal, often painful, movements and postures. It can affect any area, including the arms, legs, trunk, neck, eyelids, face, or vocal cords. While dystonia does not impact cognitive function, strength, or sensory perception, it can impair speech and significantly affect quality of life. Though not fatal, it is a chronic condition with an unpredictable prognosis.
Dystonia is the third most common movement disorder, following Parkinson’s disease and essential tremor. It affects people of all ages, races, and ethnic backgrounds—one-third of those diagnosed are children. In fact, dystonia impacts more individuals than Muscular Dystrophy, Huntington’s Disease, and Lou Gehrig’s Disease combined.
Tyler’s Hope is committed to ensuring that no other child endures the same challenges that Tyler and Samantha faced on their journey to a diagnosis. Through advocacy, education, and research, we strive to bring hope and a cure within reach.
News and Diary
They Do Not Complain
Having not updated the diary for a long time. I will attempt to give you an update on Tyler, Samantha, and Luke to share both their […]
New Year with Family
It is January 2023. My oldest son, Tyler, is currently living at home with Michelle, Luke and me. We recently sold our old property where he had his own apartment. We moved into the new house and Tyler staying with us while we searched for a home for him.Ringing in the New Year
Tyler continues to look for treatments and participate in what he can to help us in the research. The disabilities caused by his Dystonia like every […]
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If you are interested in making a donation to support dystonia research toward a cure, awareness and education activities, and support programs click the button below.
