Our Mission

About Tyler’s Hope for a Dystonia Cure

Founded in 2006, Tyler’s Hope for a Dystonia Cure is dedicated to raising awareness, advancing research, and accelerating the discovery of effective treatments for dystonia.

Dystonia is a neurological movement disorder that causes involuntary muscle contractions, forcing parts of the body into abnormal, often painful, movements and postures. It can affect any area, including the arms, legs, trunk, neck, eyelids, face, or vocal cords. While dystonia does not impact cognitive function, strength, or sensory perception, it can impair speech and significantly affect quality of life. Though not fatal, it is a chronic condition with an unpredictable prognosis.

Dystonia is the third most common movement disorder, following Parkinson’s disease and essential tremor. It affects people of all ages, races, and ethnic backgrounds—one-third of those diagnosed are children. In fact, dystonia impacts more individuals than Muscular Dystrophy, Huntington’s Disease, and Lou Gehrig’s Disease combined.

Tyler’s Hope is committed to ensuring that no other child endures the same challenges that Tyler and Samantha faced on their journey to a diagnosis. Through advocacy, education, and research, we strive to bring hope and a cure within reach.