Surgeries for both Tyler and Samantha

It has been a while since I last wrote an update. The blog started out to give an inside look into daily life with dystonia but it is hard to give an update when things don’t change much. The blog is about dystonia and my family’s struggles or triumphs with Dystonia, not about the foundation.

I have met several people this week that have had dystonia for many years and their families are affected (children and adults). I love meeting these people and sharing stories as well as encouragement.

Both Tyler and Samantha have been doing well by getting good grades in school and being active. Tyler and I recently went on a father/son trip to Idaho fly fishing on the Snake River. This was an incredible experience and a trip I will treasure and never forget. Other than being scared to death by a huge bull moose that wondered into our campsite, we spent time with one of Tyler’s best friends and mentor, Stephen Griffin. Our other guide Ryan Todd took care of us by putting us on the fish and making sure we had the best adventure possible. These guys got a contraption that a vet made for people with one arm to be able to fish. It is a harness that strapped to Tyler’s chest and held the reel in place while allowing him to take the rod off to cast and mend the line separately. He caught a ton of big fish and impressed me with his abilities. The contraption is unbelievable and will change the lives of many allowing them to fish when they could not before.